About The Rare Disease Patients Organization in China

The Rare Disease Patients Organization in China (RDPOC), is a young organization established in 2014 Christmas Created by Shawn Young who suffer from LGMD 2E and Beijing Similan Molecular Medicine Technology Co., Ltd.,

The RDPOC focusing on rare disease and other related conditions. We a unique federation of voluntary health organizations dedicated to helping people with rare diseases in China and assisting the organizations and individual to the identification, treatment, and cure of rare disorders through our programs of education, advocacy, research, cooperation and other services.


We are dedicated to beating rare disease and other related conditions by finding treatments and cures and to improving the lives of everyone affected by them.


RDPOC also is a non-profit organization. Its primary sources of funding include grants and contracts, contributions, and fund-raising event. and some services.

RDPOC believes in the power of collaboration. It is the foundation upon which us was built. our works with partners in the patient community, company, government, academia, and industry who share the ultimate goal of identifying, treating, and curing rare diseas

Our Mission

☆ Establishing and providing access to rare disease data and samples

☆ Search to deliver new therapies  for rare diseases patients 

☆ Guide the patients to medical treatment and diagnosis 

☆ Patients education and obtain employment & Disease management

Event & News

BEIJING - Nearly 10 million patients suffering from rare diseases in China are facing difficulties receiving proper diagnosis and treatment,Some patients gave up treatment even though imported medicine was available, adding that costly drug prices as well as incomplete medical security are major barriers.

Contact

Would you like to know more about Rare Disease Patients Organization in China ? We gladly give you advice on placement, We aim to give you maximum If you have any questions or need more information, please call us directly or Email at any time. information@rdp.org.cn